{"id":951,"date":"2024-05-02T21:05:06","date_gmt":"2024-05-02T21:05:06","guid":{"rendered":"https:\/\/pemaejetes.org.al\/?p=951"},"modified":"2024-05-02T21:05:06","modified_gmt":"2024-05-02T21:05:06","slug":"tirane-te-jetosh-ne-shqiperi-me-sklerozen-multiple-tubimi-frymezues-nga-fondacioni-pema-e-jetes","status":"publish","type":"post","link":"https:\/\/pemaejetes.org.al\/index.php\/2024\/05\/02\/tirane-te-jetosh-ne-shqiperi-me-sklerozen-multiple-tubimi-frymezues-nga-fondacioni-pema-e-jetes\/","title":{"rendered":"Tirane \/ “T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple: Tubimi frym\u00ebzues nga Fondacioni ‘Pema e Jet\u00ebs'”"},"content":{"rendered":"\n

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Sot, m\u00eb 27 janar, Fondacioni “Pema e Jet\u00ebs” organizoi nj\u00eb tubim t\u00eb r\u00ebnd\u00ebsish\u00ebm me tem\u00ebn “T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple”, ku u mblodh\u00ebn individ\u00eb me Skleroz\u00eb Multiple, familjar\u00eb t\u00eb tyre, mjek\u00eb, psikolog, Neurolog pediat\u00ebr, si dhe an\u00ebtar\u00eb t\u00eb shoq\u00ebris\u00eb civile dhe profesionist\u00eb t\u00eb fushave t\u00eb ndryshme.<\/p>\n\n\n\n

\u2b07\ufe0fKy takim u prezantua nga Bashk\u00ebthemeluesja e fondacionit Sociologe Marsida Simo.<\/p>\n\n\n\n

\u27a1\ufe0fFjala e hapjes u mbajt nga Presidenti i fondacionit, Tanush Caushi, i cili ndau nj\u00eb analiz\u00eb t\u00eb situat\u00ebs aktuale dhe kauzat q\u00eb fondacioni ka ngritur. U theksua mungesa e medikamenteve t\u00eb reja dhe programet rehabilituese fizike dhe psikologjike, si dhe fakti q\u00eb asnj\u00eb medikament i ri nuk \u00ebsht\u00eb futur n\u00eb list\u00ebn e barnave t\u00eb rimbursueshme q\u00eb nga viti 2014.<\/p>\n\n\n\n

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\u27a1\ufe0fM\u00eb pas Marsida Simo preku an\u00ebn sociale t\u00eb s\u00ebmundjes dhe sfidat q\u00eb kan\u00eb k\u00ebta persona.<\/p>\n\n\n\n

\u27a1\ufe0fN\u00eb tubim, psikologja Klorinda Serani dha detaje p\u00ebr fazat psikologjike q\u00eb kalon nj\u00eb person nga momenti i diagnoz\u00ebs e m\u00eb tej, duke theksuar r\u00ebnd\u00ebsin\u00eb e seancave me psikologun.
\u27a1\ufe0fGjithashtu, Darian Komomi nga Komisioneri p\u00ebr mbrojtjen nga Diskriminimi b\u00ebri thirrje p\u00ebr denoncimin e \u00e7do abuzimi, diskriminimi apo problemi q\u00eb mund t\u00eb hasin personat me aft\u00ebsi t\u00eb kufizuar.<\/p>\n\n\n\n

N\u00eb pjes\u00ebn e fjalimeve, shkrimtarja Endiza Dizdari Dema dhe Fitim Bala ndan\u00eb sfidat dhe k\u00ebrkesat e komunitetit t\u00eb pacient\u00ebve me Skleroz\u00eb Multiple. David Rosenbaum p\u00ebrfaq\u00ebsues i nj\u00eb studimi trial p\u00ebr pacient\u00ebt me skleroz\u00eb multiple shprehu alternativat dhe p\u00ebrfitimet q\u00eb kan\u00eb pacient\u00ebt.<\/p>\n\n\n\n

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N\u00eb p\u00ebrmbyllje, Efti Demaj dhe doktoresha Vjollca Koko ndan\u00eb p\u00ebrvojat e tyre personale, duke treguar p\u00ebr sfidat dhe triumfet mbi Skleroz\u00ebn Multiple. Ky tubim ishte nj\u00eb burim frym\u00ebzimi dhe informacioni p\u00ebr t\u00eb gjith\u00eb ata q\u00eb jetojn\u00eb me k\u00ebt\u00eb s\u00ebmundje dhe p\u00ebr bashk\u00ebpunimin n\u00eb nd\u00ebrtimin e nj\u00eb shoq\u00ebrie m\u00eb t\u00eb mir\u00eb dhe m\u00eb t\u00eb nd\u00ebrgjegjshme p\u00ebr t\u00eb gjith\u00eb.<\/p>\n\n\n\n

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Sot, m\u00eb 27 janar, Fondacioni “Pema e Jet\u00ebs” organizoi nj\u00eb tubim t\u00eb r\u00ebnd\u00ebsish\u00ebm me tem\u00ebn “T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple”, ku u mblodh\u00ebn individ\u00eb me Skleroz\u00eb Multiple, familjar\u00eb t\u00eb tyre, mjek\u00eb, psikolog, Neurolog pediat\u00ebr, si dhe an\u00ebtar\u00eb t\u00eb shoq\u00ebris\u00eb civile dhe profesionist\u00eb t\u00eb fushave t\u00eb ndryshme. \u2b07\ufe0fKy takim u prezantua nga Bashk\u00ebthemeluesja e […]<\/p>\n","protected":false},"author":2,"featured_media":952,"comment_status":"open","ping_status":"open","sticky":true,"template":"elementor_canvas","format":"standard","meta":{"footnotes":""},"categories":[22,21],"tags":[20,19],"class_list":["post-951","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-kombetare-projekte","category-projekte","tag-fondacionipemaejetes","tag-sklerozamultiple"],"acf":[],"yoast_head":"\nTirane \/ "T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple: Tubimi frym\u00ebzues nga Fondacioni 'Pema e Jet\u00ebs'" - Pema e Jetes<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pemaejetes.org.al\/index.php\/2024\/05\/02\/tirane-te-jetosh-ne-shqiperi-me-sklerozen-multiple-tubimi-frymezues-nga-fondacioni-pema-e-jetes\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Tirane \/ "T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple: Tubimi frym\u00ebzues nga Fondacioni 'Pema e Jet\u00ebs'" - Pema e Jetes\" \/>\n<meta property=\"og:description\" content=\"Sot, m\u00eb 27 janar, Fondacioni “Pema e Jet\u00ebs” organizoi nj\u00eb tubim t\u00eb r\u00ebnd\u00ebsish\u00ebm me tem\u00ebn “T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple”, ku u 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