{"id":1573,"date":"2024-09-23T06:21:02","date_gmt":"2024-09-23T06:21:02","guid":{"rendered":"https:\/\/pemaejetes.org.al\/?p=1573"},"modified":"2024-09-23T06:21:03","modified_gmt":"2024-09-23T06:21:03","slug":"fondacioni-pema-e-jetes-ne-ectrims-patient-community-day-ne-kopenhagen","status":"publish","type":"post","link":"http:\/\/pemaejetes.org.al\/index.php\/2024\/09\/23\/fondacioni-pema-e-jetes-ne-ectrims-patient-community-day-ne-kopenhagen\/","title":{"rendered":"Fondacioni Pema e Jet\u00ebs n\u00eb ECTRIMS Patient Community Day n\u00eb Kopenhagen"},"content":{"rendered":"\n

Fondacioni Pema e Jet\u00ebs mori pjes\u00eb me krenari n\u00eb ECTRIMS Patient Community Day<\/strong>, nj\u00eb aktivitet i r\u00ebnd\u00ebsish\u00ebm nd\u00ebrkomb\u00ebtar q\u00eb u mbajt n\u00eb Kopenhagen, ku pjes\u00ebmarr\u00ebsit diskutuan p\u00ebr p\u00ebrparimet m\u00eb t\u00eb fundit n\u00eb k\u00ebrkimet dhe trajtimet e Skleroz\u00ebs Multiple (SM).<\/p>\n\n\n\n

\u00c7far\u00eb \u00ebsht\u00eb ECTRIMS?<\/h4>\n\n\n\n

ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) \u00ebsht\u00eb nj\u00eb nga konferencat m\u00eb t\u00eb r\u00ebnd\u00ebsishme n\u00eb bot\u00eb p\u00ebr trajtimin dhe k\u00ebrkimet n\u00eb fush\u00ebn e Skleroz\u00ebs Multiple. Ky aktivitet synon t\u00eb sjell\u00eb s\u00eb bashku pacient\u00ebt, studiuesit dhe specialist\u00ebt p\u00ebr t\u00eb ndar\u00eb informacionet m\u00eb t\u00eb reja dhe p\u00ebr t\u00eb diskutuar mbi zhvillimet e fundit.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Pikat kryesore t\u00eb diskutimit<\/h3>\n\n\n\n

Gjat\u00eb k\u00ebtij eventi u theksuan disa aspekte t\u00eb r\u00ebnd\u00ebsishme n\u00eb lidhje me Skleroz\u00ebn Multiple<\/strong>:<\/p>\n\n\n\n

1. P\u00ebrparimet n\u00eb trajtimet ekzistuese p\u00ebr SM<\/h4>\n\n\n\n

Sot ekzistojn\u00eb disa trajtime q\u00eb jan\u00eb efektive n\u00eb ngadal\u00ebsimin ose ndalimin e p\u00ebrparimit t\u00eb SM-s\u00eb<\/strong> duke parandaluar d\u00ebmtime t\u00eb m\u00ebtejshme. Megjithat\u00eb, \u00ebsht\u00eb e r\u00ebnd\u00ebsishme t\u00eb kuptohet se k\u00ebto trajtime ende nuk kan\u00eb arritur t\u00eb riparojn\u00eb d\u00ebmtimet e shkaktuara nga s\u00ebmundja, si\u00e7 \u00ebsht\u00eb d\u00ebmtimi i mielin\u00ebs \u2013 shtresa mbrojt\u00ebse e qelizave nervore.<\/p>\n\n\n\n

2. Shpresa p\u00ebr riparimin e mielin\u00ebs<\/h4>\n\n\n\n

Nj\u00eb nga temat m\u00eb t\u00eb diskutuara ishte riparimi i mielin\u00ebs<\/strong>, i cili shihet si p\u00ebrparimi i ardhsh\u00ebm i madh n\u00eb trajtimin e Skleroz\u00ebs Multiple. Ky riparim do t\u00eb ishte i r\u00ebnd\u00ebsish\u00ebm p\u00ebr t\u00eb rikthyer funksionet neurologjike dhe p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar cil\u00ebsin\u00eb e jet\u00ebs p\u00ebr pacient\u00ebt me SM. Aktualisht, hulumtimet po p\u00ebrparojn\u00eb n\u00eb k\u00ebt\u00eb drejtim, por ende nuk ka trajtime t\u00eb disponueshme q\u00eb t\u00eb mund ta arrijn\u00eb k\u00ebt\u00eb.<\/p>\n\n\n\n

3. Roli i zakoneve t\u00eb sh\u00ebndetshme<\/h4>\n\n\n\n

U theksua gjithashtu r\u00ebnd\u00ebsia e mbajtjes s\u00eb nj\u00eb stili jetese t\u00eb sh\u00ebndetsh\u00ebm<\/strong>, duke p\u00ebrfshir\u00eb:<\/p>\n\n\n\n

    \n
  • Ushtrime t\u00eb rregullta<\/strong><\/li>\n\n\n\n
  • Diet\u00eb e balancuar<\/strong><\/li>\n\n\n\n
  • Menaxhimi i stresit<\/strong><\/li>\n<\/ul>\n\n\n\n

    K\u00ebto zakone jo vet\u00ebm q\u00eb mund t\u00eb p\u00ebrmir\u00ebsojn\u00eb cil\u00ebsin\u00eb e jet\u00ebs p\u00ebr pacient\u00ebt me SM, por gjithashtu mund t\u00eb kontribuojn\u00eb n\u00eb ngadal\u00ebsimin e atrofis\u00eb s\u00eb trurit<\/strong>, nj\u00eb nga komplikimet kryesore t\u00eb k\u00ebsaj s\u00ebmundjeje.<\/p>\n\n\n\n

    \"\"<\/figure>\n\n\n\n

    Faktor\u00ebt e rrezikut dhe k\u00ebrkimet mbi Epstein-Barr Virus (EBV)<\/h3>\n\n\n\n

    Nj\u00eb diskutim i ve\u00e7ant\u00eb u fokusua n\u00eb lidhjen midis Epstein-Barr Virus (EBV)<\/strong> dhe Skleroz\u00ebs Multiple. Hulumtimet e fundit kan\u00eb treguar nj\u00eb lidhje t\u00eb mundshme midis k\u00ebtij virusi dhe rritjes s\u00eb rrezikut p\u00ebr zhvillimin e SM-s\u00eb. N\u00eb k\u00ebt\u00eb aktivitet u ndan\u00eb njohuri t\u00eb reja mbi m\u00ebnyrat se si EBV ndikon n\u00eb sistemin imunitar dhe rolin e tij t\u00eb mundsh\u00ebm n\u00eb fillimin e SM-s\u00eb.<\/p>\n\n\n\n

    Nj\u00eb nga zbulimet m\u00eb premtuese \u00ebsht\u00eb zhvillimi i nj\u00eb vaksine kund\u00ebr EBV<\/strong>, q\u00eb mund t\u00eb ndihmoj\u00eb n\u00eb parandalimin e Skleroz\u00ebs Multiple tek individ\u00ebt e infektuar me k\u00ebt\u00eb virus. K\u00ebrkimet mbi k\u00ebt\u00eb fush\u00eb jan\u00eb ende n\u00eb faza t\u00eb hershme, por rezultatet e para jan\u00eb premtuese.<\/p>\n\n\n\n

    Regjistrat p\u00ebr ndjekjen e pacient\u00ebve dhe p\u00ebrmir\u00ebsimi i hulumtimeve<\/h3>\n\n\n\n

    Nj\u00eb aspekt tjet\u00ebr i r\u00ebnd\u00ebsish\u00ebm i diskutuar ishte r\u00ebnd\u00ebsia e mbajtjes s\u00eb regjistrave t\u00eb sakta dhe t\u00eb plot\u00eb<\/strong> p\u00ebr pacient\u00ebt me SM. N\u00eb Danimark\u00eb, p\u00ebr shembull, regjistri p\u00ebr ndjekjen e pacient\u00ebve me SM \u00ebsht\u00eb aktiv p\u00ebr m\u00eb shum\u00eb se 70 vite, duke u b\u00ebr\u00eb nj\u00eb burim i vlefsh\u00ebm p\u00ebr studiuesit. T\u00eb dh\u00ebnat<\/strong> nga k\u00ebto regjistra ndihmojn\u00eb p\u00ebr t\u00eb kuptuar m\u00eb mir\u00eb s\u00ebmundjen dhe p\u00ebr t\u00eb identifikuar faktor\u00ebt e rrezikut n\u00eb nj\u00eb m\u00ebnyr\u00eb m\u00eb t\u00eb detajuar.<\/p>\n\n\n\n

    Menaxhimi i simptomave t\u00eb SM-s\u00eb<\/h3>\n\n\n\n

    Nj\u00eb pjes\u00eb e r\u00ebnd\u00ebsishme e k\u00ebtij aktiviteti ishte gjithashtu diskutimi p\u00ebr menaxhimin e simptomave<\/strong> t\u00eb Skleroz\u00ebs Multiple. Simptoma t\u00eb tilla si lodhja, problemet me kujtes\u00ebn dhe p\u00ebrqendrimin, si dhe v\u00ebshtir\u00ebsit\u00eb me gjumin<\/strong>, jan\u00eb disa nga sfidat kryesore me t\u00eb cilat p\u00ebrballen pacient\u00ebt. Menaxhimi i k\u00ebtyre simptomave \u00ebsht\u00eb thelb\u00ebsor p\u00ebr p\u00ebrmir\u00ebsimin e cil\u00ebsis\u00eb s\u00eb jet\u00ebs s\u00eb pacient\u00ebve me SM.<\/p>\n\n\n\n

    Fondacioni Pema e Jet\u00ebs<\/strong> \u00ebsht\u00eb e angazhuar p\u00ebr t\u00eb mb\u00ebshtetur dhe informuar komunitetin e Skleroz\u00ebs Multiple n\u00eb Shqip\u00ebri, dhe pjes\u00ebmarrja jon\u00eb n\u00eb ECTRIMS Patient Community Day<\/strong> na ka sjell\u00eb m\u00eb pran\u00eb p\u00ebrparimeve m\u00eb t\u00eb fundit shkencore dhe strategjive t\u00eb reja p\u00ebr p\u00ebrmir\u00ebsimin e trajtimit t\u00eb SM-s\u00eb. Ne jemi t\u00eb p\u00ebrkushtuar p\u00ebr t\u00eb ndar\u00eb k\u00ebto informacione me pacient\u00ebt dhe p\u00ebr t\u00eb kontribuar n\u00eb ngritjen e nd\u00ebrgjegj\u00ebsimit p\u00ebr k\u00ebt\u00eb s\u00ebmundje.<\/p>\n\n\n\n

    Faleminderit t\u00eb gjith\u00ebve q\u00eb na mb\u00ebshtesin dhe q\u00eb jan\u00eb pjes\u00eb e k\u00ebsaj lufte kund\u00ebr Skleroz\u00ebs Multiple!<\/p>\n","protected":false},"excerpt":{"rendered":"

    Fondacioni Pema e Jet\u00ebs mori pjes\u00eb me krenari n\u00eb ECTRIMS Patient Community Day, nj\u00eb aktivitet i r\u00ebnd\u00ebsish\u00ebm nd\u00ebrkomb\u00ebtar q\u00eb u mbajt n\u00eb Kopenhagen, ku pjes\u00ebmarr\u00ebsit diskutuan p\u00ebr p\u00ebrparimet m\u00eb t\u00eb fundit n\u00eb k\u00ebrkimet dhe trajtimet e Skleroz\u00ebs Multiple (SM). \u00c7far\u00eb \u00ebsht\u00eb ECTRIMS? ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) \u00ebsht\u00eb nj\u00eb nga […]<\/p>\n","protected":false},"author":2,"featured_media":1578,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8,26],"tags":[],"class_list":["post-1573","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktivitete","category-evente"],"acf":[],"yoast_head":"\nFondacioni Pema e Jet\u00ebs n\u00eb ECTRIMS Patient Community Day n\u00eb Kopenhagen - Pema e Jetes<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/pemaejetes.org.al\/index.php\/2024\/09\/23\/fondacioni-pema-e-jetes-ne-ectrims-patient-community-day-ne-kopenhagen\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Fondacioni Pema e Jet\u00ebs n\u00eb ECTRIMS Patient Community Day n\u00eb Kopenhagen - Pema e Jetes\" \/>\n<meta property=\"og:description\" content=\"Fondacioni Pema e Jet\u00ebs mori pjes\u00eb me krenari n\u00eb ECTRIMS Patient Community Day, nj\u00eb aktivitet i r\u00ebnd\u00ebsish\u00ebm nd\u00ebrkomb\u00ebtar q\u00eb u mbajt n\u00eb Kopenhagen, ku pjes\u00ebmarr\u00ebsit diskutuan p\u00ebr p\u00ebrparimet m\u00eb t\u00eb fundit n\u00eb k\u00ebrkimet dhe trajtimet e Skleroz\u00ebs Multiple (SM). \u00c7far\u00eb \u00ebsht\u00eb ECTRIMS? 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