{"id":1440,"date":"2024-06-02T16:08:44","date_gmt":"2024-06-02T16:08:44","guid":{"rendered":"https:\/\/pemaejetes.org.al\/?p=1440"},"modified":"2024-06-02T16:10:26","modified_gmt":"2024-06-02T16:10:26","slug":"edhe-une-jam-me-skleroze-multiple-takimi-ndergjegjesues-nga-fondacioni-pema-e-jetes","status":"publish","type":"post","link":"http:\/\/pemaejetes.org.al\/index.php\/2024\/06\/02\/edhe-une-jam-me-skleroze-multiple-takimi-ndergjegjesues-nga-fondacioni-pema-e-jetes\/","title":{"rendered":"\u201cEdhe Un\u00eb Jam me Skleroz\u00eb Multiple\u201d – Takimi nd\u00ebrgjegj\u00ebsues nga Fondacioni ”Pema e Jetes”"},"content":{"rendered":"\n

\u201cEdhe Un\u00eb Jam me Skleroz\u00eb Multiple\u201d – Takimi Nd\u00ebrgjegj\u00ebsues nga Fondacioni ”Pema e Jetes” tek COD – Center For Openness And Dialogue<\/a>\"\u2764\"\"\ud83d\ude4f\"\"\ud83d\ude4f\"\"\ud83d\ude4f\"\"\ud83d\ude4f\"<\/p>\n\n\n\n

N\u00eb kuad\u00ebr t\u00eb Dit\u00ebs Nd\u00ebrkomb\u00ebtare t\u00eb Skleroz\u00ebs Multiple, Fondacioni Pema e Jet\u00ebs, n\u00eb bashk\u00ebpunim me Sh\u00ebrbimin Universitar Neurologjik dhe n\u00ebn kujdesin e Ample, organizoi nj\u00eb takim t\u00eb r\u00ebnd\u00ebsish\u00ebm me tem\u00eb “Edhe Un\u00eb Jam me Skleroz\u00eb Multiple”. Ky aktivitet u zhvillua p\u00ebr t\u00eb rritur nd\u00ebrgjegj\u00ebsimin dhe p\u00ebr t\u00eb adresuar sfidat me t\u00eb cilat p\u00ebrballen pacient\u00ebt me skleroz\u00eb multiple n\u00eb Shqip\u00ebri.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Pjes\u00ebmarr\u00ebsit dhe Paneli Kryesor<\/strong><\/p>\n\n\n\n

N\u00eb k\u00ebt\u00eb aktivitet mor\u00ebn pjes\u00eb nj\u00eb panel i zgjedhur me kujdes, p\u00ebrfshir\u00eb autoritete shtet\u00ebrore dhe personalitete t\u00eb shquara. T\u00eb pranishmit p\u00ebrfshin\u00eb:<\/p>\n\n\n\n

Z\u00ebvend\u00ebsministren e Sh\u00ebndet\u00ebsis\u00eb, znj. Mira Rakacolli, e cila mbajti nj\u00eb fjalim p\u00ebr mb\u00ebshtetjen e qeveris\u00eb shqiptare ndaj pacient\u00ebve me skleroz\u00eb multiple.<\/p>\n\n\n\n

Shefen e Sh\u00ebrbimit Universitar Neurologjik, Prof. Dr. Jera Kruja, e cila ndau njohurit\u00eb dhe p\u00ebrvoj\u00ebn e saj mbi trajtimin dhe mb\u00ebshtetjen p\u00ebr pacient\u00ebt.<\/p>\n\n\n\n

Presidentin e Fondacionit Pema e Jet\u00ebs, z. Tanush Caushi, i cili theksoi nevojat kryesore t\u00eb pacient\u00ebve dhe r\u00ebnd\u00ebsin\u00eb e p\u00ebrfshirjes s\u00eb medikamenteve t\u00eb reja n\u00eb list\u00ebn e barnave t\u00eb rimbursueshme.<\/p>\n\n\n\n

Komisioneren e Avokatit te Popullit, e cila mb\u00ebshteti nismat p\u00ebr mbrojtjen e t\u00eb drejtave t\u00eb pacient\u00ebve.<\/p>\n\n\n\n

Rektorin e Universitetit Mjek\u00ebsor, i cili p\u00ebrmendi r\u00ebnd\u00ebsin\u00eb e edukimit dhe hulumtimit n\u00eb fush\u00ebn e skleroz\u00ebs multiple.<\/p>\n\n\n\n

Shkrimtarja dhe aktivistja znj. Endiza Dema, e prekur nga skleroza multiple, e cila ndau historin\u00eb e saj frym\u00ebzuese.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Fjalimi i Z. Tanush Caushi<\/strong><\/p>\n\n\n\n

N\u00eb fjalimin e tij, z. Tanush Caushi n\u00ebnvizoi disa pika ky\u00e7e p\u00ebr p\u00ebrmir\u00ebsimin e jet\u00ebs s\u00eb pacient\u00ebve me skleroz\u00eb multiple:<\/p>\n\n\n\n

Shtimi i medikamenteve n\u00eb list\u00ebn e barnave t\u00eb rimbursueshme, duke p\u00ebrfshir\u00eb medikamente t\u00eb reja dhe m\u00eb efektive.<\/p>\n\n\n\n

Sigurimi i sh\u00ebrbimeve t\u00eb fizioterapis\u00eb dhe psikologjis\u00eb n\u00eb qendrat sh\u00ebndet\u00ebsore, duke mund\u00ebsuar trajtim m\u00eb t\u00eb mir\u00eb dhe t\u00eb vazhduesh\u00ebm p\u00ebr pacient\u00ebt.<\/p>\n\n\n\n

Zhvillimi i nj\u00eb modeli t\u00eb ri trajtimi, i cili do t\u00eb p\u00ebrfshij\u00eb qasje m\u00eb t\u00eb personalizuara dhe mb\u00ebshtetje t\u00eb plot\u00eb p\u00ebr pacient\u00ebt dhe familjet e tyre.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Kontributi i Prof. Dr. Jera Kruja<\/p>\n\n\n\n

Prof. Dr. Jera Kruja, me ekspertiz\u00ebn e saj t\u00eb thell\u00eb n\u00eb neurologji, theksoi r\u00ebnd\u00ebsin\u00eb e mb\u00ebshtetjes p\u00ebr pacient\u00ebt me skleroz\u00eb multiple. Ajo foli p\u00ebr: Trajtimin me fizioterapi dhe sh\u00ebrbime t\u00eb tjera rehabilituese, duke shpjeguar se k\u00ebto jan\u00eb elemente ky\u00e7e p\u00ebr p\u00ebrmir\u00ebsimin e cil\u00ebsis\u00eb s\u00eb jet\u00ebs s\u00eb pacient\u00ebve.<\/p>\n\n\n\n

Rolin e edukimit dhe nd\u00ebrgjegj\u00ebsimit n\u00eb komunitet dhe nd\u00ebr profesionist\u00ebt e sh\u00ebndetit, p\u00ebr t\u00eb siguruar q\u00eb t\u00eb gjith\u00eb t\u00eb jen\u00eb t\u00eb informuar mbi m\u00ebnyrat m\u00eb t\u00eb mira t\u00eb trajtimit.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Angazhimi i Qeveris\u00eb Shqiptare<\/strong><\/p>\n\n\n\n

Z\u00ebvend\u00ebsministrja e Sh\u00ebndet\u00ebsis\u00eb, znj. Mira Rakacolli, theksoi p\u00ebrkushtimin e qeveris\u00eb shqiptare p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar jet\u00ebn e pacient\u00ebve me skleroz\u00eb multiple. Ajo njoftoi se:<\/p>\n\n\n\n

Numri i barnave p\u00ebr pacient\u00ebt me skleroz\u00eb multiple do t\u00eb shtohet n\u00eb list\u00ebn e barnave t\u00eb rimbursueshme.<\/p>\n\n\n\n

Sh\u00ebrbimet e fizioterapis\u00eb dhe psikologjis\u00eb do t\u00eb sigurohen n\u00eb qendrat sh\u00ebndet\u00ebsore deri n\u00eb fund t\u00eb vitit, duke ofruar mb\u00ebshtetje t\u00eb domosdoshme p\u00ebr pacient\u00ebt.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Fjalimi Frym\u00ebzues i Znj. Endiza Dema<\/p>\n\n\n\n

Nj\u00eb moment i ve\u00e7ant\u00eb i aktivitetit ishte fjalimi i znj. Endiza Dema, nj\u00eb shkrimtare dhe aktiviste e prekur nga skleroza multiple. Ajo ndau historin\u00eb e saj personale dhe sfidat q\u00eb ka p\u00ebrballuar. Mesazhi i saj ishte nj\u00eb burim frym\u00ebzimi p\u00ebr t\u00eb gjith\u00eb t\u00eb pranishmit, duke treguar se me mb\u00ebshtetje dhe kurajo, mund t\u00eb p\u00ebrballohen edhe sfidat m\u00eb t\u00eb v\u00ebshtira.<\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Diskutimi i Hapur<\/strong><\/p>\n\n\n\n

Pas fjalimeve kryesore, pjes\u00ebmarr\u00ebsit pat\u00ebn mund\u00ebsin\u00eb t\u00eb marrin pjes\u00eb n\u00eb nj\u00eb diskutim t\u00eb hapur. N\u00eb k\u00ebt\u00eb bised\u00eb u trajtuan tema t\u00eb ndryshme, p\u00ebrfshir\u00eb:<\/p>\n\n\n\n

Identifikimin e sfidave kryesore me t\u00eb cilat p\u00ebrballen pacient\u00ebt me skleroz\u00eb multiple.<\/p>\n\n\n\n

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Shk\u00ebmbimin e ideve dhe p\u00ebrvojave p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar sh\u00ebrbimet dhe mb\u00ebshtetjen p\u00ebr k\u00ebta pacient\u00eb.<\/p>\n\n\n\n

Nd\u00ebrgjegj\u00ebsimin dhe edukimin e publikut dhe profesionist\u00ebve t\u00eb sh\u00ebndet\u00ebsis\u00eb mbi skleroz\u00ebn multiple.<\/p>\n\n\n\n

Takimi “Edhe Un\u00eb Jam me Skleroz\u00eb Multiple” organizuar nga Fondacioni Pema e Jet\u00ebs ishte nj\u00eb hap i r\u00ebnd\u00ebsish\u00ebm drejt rritjes s\u00eb nd\u00ebrgjegj\u00ebsimit dhe mb\u00ebshtetjes p\u00ebr pacient\u00ebt me skleroz\u00eb multiple. P\u00ebrmes bashk\u00ebpunimit t\u00eb institucioneve shtet\u00ebrore, shoq\u00ebris\u00eb civile dhe individ\u00ebve t\u00eb prekur, ky aktivitet sh\u00ebnoi nj\u00eb hap t\u00eb madh drejt nj\u00eb t\u00eb ardhmeje m\u00eb t\u00eb mir\u00eb p\u00ebr t\u00eb gjith\u00eb pacient\u00ebt me skleroz\u00eb multiple n\u00eb Shqip\u00ebri.<\/p>\n\n\n\n

Autor: Fondacioni Pema e Jet\u00ebs<\/strong><\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

\u201cEdhe Un\u00eb Jam me Skleroz\u00eb Multiple\u201d – Takimi Nd\u00ebrgjegj\u00ebsues nga Fondacioni ”Pema e Jetes” tek COD – Center For Openness And Dialogue N\u00eb kuad\u00ebr t\u00eb Dit\u00ebs Nd\u00ebrkomb\u00ebtare t\u00eb Skleroz\u00ebs Multiple, Fondacioni Pema e Jet\u00ebs, n\u00eb bashk\u00ebpunim me Sh\u00ebrbimin Universitar Neurologjik dhe n\u00ebn kujdesin e Ample, organizoi nj\u00eb takim t\u00eb r\u00ebnd\u00ebsish\u00ebm me tem\u00eb “Edhe Un\u00eb Jam […]<\/p>\n","protected":false},"author":2,"featured_media":1443,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8,26],"tags":[67,64,19],"class_list":["post-1440","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktivitete","category-evente","tag-multiplesclerosis","tag-pemaejetes","tag-sklerozamultiple"],"acf":[],"yoast_head":"\n\u201cEdhe Un\u00eb Jam me Skleroz\u00eb Multiple\u201d - Takimi nd\u00ebrgjegj\u00ebsues nga Fondacioni ''Pema e Jetes'' - 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