{"id":1138,"date":"2024-05-10T21:05:32","date_gmt":"2024-05-10T21:05:32","guid":{"rendered":"https:\/\/pemaejetes.org.al\/?p=1138"},"modified":"2024-05-10T21:05:34","modified_gmt":"2024-05-10T21:05:34","slug":"bashkimi-per-ndryshim-nje-dite-frymezimi-per-te-jetuar-me-sklerozen-multiple-ne-shqiperi","status":"publish","type":"post","link":"http:\/\/pemaejetes.org.al\/index.php\/2024\/05\/10\/bashkimi-per-ndryshim-nje-dite-frymezimi-per-te-jetuar-me-sklerozen-multiple-ne-shqiperi\/","title":{"rendered":"“Bashkimi p\u00ebr Ndryshim: Nj\u00eb Dit\u00eb frym\u00ebzimi p\u00ebr t\u00eb jetuar me Skleroz\u00ebn Multiple n\u00eb Shqip\u00ebri”"},"content":{"rendered":"\n

Hyrje<\/h3>\n\n\n\n

M\u00eb 27 janar, Fondacioni “Pema e Jet\u00ebs” mbajti nj\u00eb tubim t\u00eb ve\u00e7ant\u00eb me tem\u00ebn “T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple”. Ky event u organizua n\u00eb qytetin e Tiran\u00ebs dhe mblodhi bashk\u00eb individ\u00eb t\u00eb prekur nga kjo s\u00ebmundje, familjar\u00ebt e tyre, si dhe profesionist\u00eb nga fushat e sh\u00ebndet\u00ebsis\u00eb dhe shoq\u00ebria civile. Ngjarja synoi t\u00eb ndri\u00e7oj\u00eb sfidat dhe t\u00eb ofroj\u00eb mb\u00ebshtetje p\u00ebr ata q\u00eb p\u00ebrballen \u00e7do dit\u00eb me k\u00ebt\u00eb s\u00ebmundje t\u00eb v\u00ebshtir\u00eb.<\/p>\n\n\n\n

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Roli dhe Fjala e Bashk\u00ebthemelueses<\/h3>\n\n\n\n

Bashk\u00ebthemeluesja e Fondacionit, sociologe Marsida Simo, hapi takimin me nj\u00eb p\u00ebrshkrim t\u00eb sfidave me t\u00eb cilat p\u00ebrballen njer\u00ebzit q\u00eb jetojn\u00eb me Skleroz\u00ebn Multiple n\u00eb Shqip\u00ebri. Ajo theksoi nevoj\u00ebn p\u00ebr nj\u00eb rrjet m\u00eb t\u00eb gjer\u00eb mb\u00ebshtet\u00ebs dhe qasje m\u00eb t\u00eb mir\u00eb n\u00eb sh\u00ebrbimet sh\u00ebndet\u00ebsore, si dhe r\u00ebnd\u00ebsin\u00eb e p\u00ebrfshirjes s\u00eb komunitetit p\u00ebr t\u00eb luftuar stigma q\u00eb rrethon k\u00ebt\u00eb s\u00ebmundje.<\/p>\n\n\n\n

Analiza e Situat\u00ebs nga Presidenti i Fondacionit<\/h3>\n\n\n\n

Presidenti i Fondacionit, Tanush Caushi, foli mbi munges\u00ebn e medikamenteve t\u00eb reja n\u00eb list\u00ebn e barnave t\u00eb rimbursueshme q\u00eb nga viti 2014. Ai vuri n\u00eb pah sfidat me t\u00eb cilat p\u00ebrballen pacient\u00ebt, si mungesa e programit rehabilitues fizik dhe psikologjik, dhe theksoi nevoj\u00ebn p\u00ebr p\u00ebrmir\u00ebsime n\u00eb politikat sh\u00ebndet\u00ebsore p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar jet\u00ebn e njer\u00ebzve t\u00eb prekur.<\/p>\n\n\n\n

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Intervenimet nga Ekspert\u00ebt dhe Aktivist\u00ebt<\/h3>\n\n\n\n

Psikologja Klorinda Serani ndau njohurit\u00eb e saj mbi fazat psikologjike q\u00eb kalon nj\u00eb person pas diagnoz\u00ebs, duke theksuar r\u00ebnd\u00ebsin\u00eb e seancave t\u00eb rregullta me psikologun. Nga ana tjet\u00ebr, Darian Komomi nga Komisioneri p\u00ebr Mbrojtjen nga Diskriminimi inkurajoi njer\u00ebzit t\u00eb denoncojn\u00eb \u00e7do rast abuzimi apo diskriminimi. Gjithashtu, p\u00ebrfaq\u00ebsuesi i nj\u00eb studimi trial, David Rosenbaum, diskutoi p\u00ebr alternativat dhe p\u00ebrfitimet q\u00eb sjellin studimet e reja p\u00ebr pacient\u00ebt.<\/p>\n\n\n\n

P\u00ebrvojat Personale dhe P\u00ebrfundimi<\/h3>\n\n\n\n

N\u00eb pjes\u00ebn e fundit t\u00eb tubimit, Efti Demaj dhe doktoresha Vjollca Koko ndan\u00eb historit\u00eb e tyre t\u00eb luft\u00ebs personale me Skleroz\u00ebn Multiple, duke nxjerr\u00eb n\u00eb pah sfidat dhe triumfet q\u00eb kan\u00eb p\u00ebrjetuar. Ky tubim u shnd\u00ebrrua n\u00eb nj\u00eb burim frym\u00ebzimi dhe informacioni, duke ndihmuar n\u00eb nd\u00ebrtimin e nj\u00eb shoq\u00ebrie m\u00eb t\u00eb nd\u00ebrgjegjshme dhe t\u00eb p\u00ebrkushtuar p\u00ebr t\u00eb mb\u00ebshtetur k\u00ebt\u00eb komunitet.<\/p>\n\n\n\n

Thirrje p\u00ebr Veprim<\/h3>\n\n\n\n

Ne ju ftojm\u00eb t\u00eb m\u00ebsoni m\u00eb shum\u00eb dhe t\u00eb angazhoheni me Fondacionin “Pema e Jet\u00ebs”. Bashk\u00eb, mund t\u00eb ndihmojm\u00eb n\u00eb nd\u00ebrtimin e nj\u00eb t\u00eb ardhmeje m\u00eb t\u00eb mir\u00eb p\u00ebr t\u00eb gjith\u00eb ata q\u00eb jetojn\u00eb me Skleroz\u00ebn Multiple n\u00eb Shqip\u00ebri.<\/p>\n\n\n\n

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\"\"<\/figure>\n<\/figure>\n","protected":false},"excerpt":{"rendered":"

Hyrje M\u00eb 27 janar, Fondacioni “Pema e Jet\u00ebs” mbajti nj\u00eb tubim t\u00eb ve\u00e7ant\u00eb me tem\u00ebn “T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple”. Ky event u organizua n\u00eb qytetin e Tiran\u00ebs dhe mblodhi bashk\u00eb individ\u00eb t\u00eb prekur nga kjo s\u00ebmundje, familjar\u00ebt e tyre, si dhe profesionist\u00eb nga fushat e sh\u00ebndet\u00ebsis\u00eb dhe shoq\u00ebria civile. Ngjarja synoi t\u00eb […]<\/p>\n","protected":false},"author":2,"featured_media":1145,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8,26],"tags":[],"class_list":["post-1138","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-aktivitete","category-evente"],"acf":[],"yoast_head":"\n"Bashkimi p\u00ebr Ndryshim: Nj\u00eb Dit\u00eb frym\u00ebzimi p\u00ebr t\u00eb jetuar me Skleroz\u00ebn Multiple n\u00eb Shqip\u00ebri" - Pema e Jetes<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/pemaejetes.org.al\/index.php\/2024\/05\/10\/bashkimi-per-ndryshim-nje-dite-frymezimi-per-te-jetuar-me-sklerozen-multiple-ne-shqiperi\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\""Bashkimi p\u00ebr Ndryshim: Nj\u00eb Dit\u00eb frym\u00ebzimi p\u00ebr t\u00eb jetuar me Skleroz\u00ebn Multiple n\u00eb Shqip\u00ebri" - Pema e Jetes\" \/>\n<meta property=\"og:description\" content=\"Hyrje M\u00eb 27 janar, Fondacioni “Pema e Jet\u00ebs” mbajti nj\u00eb tubim t\u00eb ve\u00e7ant\u00eb me tem\u00ebn “T\u00eb jetosh n\u00eb Shqip\u00ebri me Skleroz\u00ebn Multiple”. Ky event u organizua n\u00eb qytetin e Tiran\u00ebs dhe mblodhi bashk\u00eb individ\u00eb t\u00eb prekur nga kjo s\u00ebmundje, familjar\u00ebt e tyre, si dhe profesionist\u00eb nga fushat e sh\u00ebndet\u00ebsis\u00eb dhe shoq\u00ebria civile. 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Ky event u organizua n\u00eb qytetin e Tiran\u00ebs dhe mblodhi bashk\u00eb individ\u00eb t\u00eb prekur nga kjo s\u00ebmundje, familjar\u00ebt e tyre, si dhe profesionist\u00eb nga fushat e sh\u00ebndet\u00ebsis\u00eb dhe shoq\u00ebria civile. 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